Coping with chronic heart ache ~

[GRiver]

You two will be in my thoughts and sending good mojo your way.

[TnRiver46]

Great to hear she’s back home! 🙏 

[A-Jay]

Update 03 Aug ~

The whirl wind continues.

This was Lynn at Henry Ford on 16 July in the throws of scary renal failure and insane water retention.

 

This was yesterday 02 Aug - 60 lbs later.

Doesn't seem real. 

 

Currently  going to 4 hour Dialysis 3 days a week,

Chemo once every 2 weeks and a completely new diet.

We're working on making this the new normal.

It's just what we do. 

Thanks for the support.

A-Jay

 

 

 

 

 

 

[12poundbass]

Glad to hear she’s doing better!

[Functional]

That's one strong woman!  

[TnRiver46]

Wow, that’s a rapid recovery! Here’s hoping for more of this positive trajectory in the coming weeks 

[Glenn]

Amazing woman she is.  Simply amazing.

[T-Billy]

Thanks for the update Andy. Y'all have been on my mind a lot lately. I thought about sending a PM, but didn't want to pry. Figured you'd update here when you were ready. The prayers continue, and I'm happy to see she's doing better. 

[A-Jay]

5 hours ago, T-Billy said:

Thanks for the update Andy. Y'all have been on my mind a lot lately. I thought about sending a PM, but didn't want to pry. Figured you'd update here when you were ready. The prayers continue, and I'm happy to see she's doing better. 

You're Welcome and Thank You.

The generous support offered here by you as well as all of BR forum family has been inspiring and so helful to us both. 

Also in my book, generous and sincere concern is never prying. 

Thanks again brother, you're a good man.

👍

A-Jay

[GaryH]

Great news.. Lynn shows incredible strength and faith that is an inspiration for all.  Thanks for sharing Andy. 

[NorcalBassin]

What a transformation! The "after" pic looks like she's been hitting the gym with you and is ready for a triathlon!!

[Mobasser]

A-Jay, glad to hear that she's doing better. I'm continuing to send positive thoughts your way sir.

[Swamp Girl]

Andy, do you know why her nephrologist hasn't suggested home dialysis?

[A-Jay]

2 hours ago, ol'crickety said:

Andy, do you know why her nephrologist hasn't suggested home dialysis?

It's a complicated deal.

All said and done currently the at home treatment is not our best option. 

Fortunately the treatment center is not too much of a hike.

A-Jay

 

[Swamp Girl]

1 hour ago, A-Jay said:

It's a complicated deal.

All said and done currently the at home treatment is not our best option. 

Fortunately the treatment center is not too much of a hike.

A-Jay

 

 

Thanks for letting me know. I should have figured that it was considered. I only mentioned it because my spouse's nephrologist has raised nighttime dialysis as an option.

[A-Jay]

23 Aug 24 Update ~ We're hanging in there.

Lynn's in a holding pattern right now.

Treatment is still the same as my last update.

Kidney function is SLOWLY / Incrementally improving.

This is buying her some much needed time. 

Looks like this will play out and may go one of three ways.

Kidney regains normal function, 

Dialysis forever or a kidney transplant.

She's going on the need a kidney donor list in a week or two just in case.

Chemo is once every two weeks and her Lupus is hiding in the weeds. 

I'm trying to take every opportunity I can to decompress.

Thank you all Very Much for the continued support.

A-Jay

[TnRiver46]

#lynstrong

[Tim Kelly]

Thinking of you.

[detroit1]

Lynn is blessed to have you in her  life. ❤️

[Functional]

You probably know but you can donate your kidney even if you aren't a match. You basically trade yours for someone who matches. There is hardly any wait time for it that way. The recovery is usually harder on the donor than recipient though just fyi. Incision at the lower abdomen takes time to heal. 

[A-Jay]

30 Aug 24 ~ Update. 

Last post saw that Lynn's Kidney function was SLOWLY / Incrementally improving. Thankfully that has continued.  Sufficiently enough that her 3 days a week dialysis has been reduced to 2 days a week.

THIS IS HUGE and there were tears shed.

This latest medical deal has been serious and way scary.  We try so hard to keep composed, regardless of that's going on at the time.  Knowing how volital and how quickly circumstances can change has taught us that maintaining a level head helps control the wildy debilitating stress that can be a another layer that doesn't help anything.

Either way, this is a big win.

The smiles are the best

A-Jay

 

 

[TnRiver46]

Love a positive update! 

[A-Jay]

18 minutes ago, TnRiver46 said:

Love a positive update! 

Thank you.

ME TOO ! ! !

A-Jay 

[Eric 26]

[Tim Kelly]

Wonderful